Celine Dion has courageously opened up about her deeply personal journey with stiff person syndrome (SPS) in an exclusive interview with Sunrise.
In the poignant interview, the 56-year-old singer shared her fears and concerns, revealing how her sons Nelson, Eddy, and Rene-Charles have been deeply worried about her health, fearing the worst.
This revelation came in a promotional video for the anticipated interview, shedding light on a struggle that Dion had kept private until now.
Diagnosed with SPS nearly two years ago, Dion's battle with this rare and debilitating neurological disorder has been a closely guarded secret, until she decided to share her story with Sunrise correspondent Mylee Hogan.
In a preview clip, Dion opened up about the profound impact SPS has had on her life and her family, her voice trembling with emotion as she spoke about the fear of leaving her children without parents.
"I don't have my mum, I don't have my dad," Dion confessed. "My kids are scared because they lost their dad, and they're wondering if I'm going to die. I don't want to die, I don't want to lie."
The singer recounted how her health problems began with mysterious symptoms, leaving her and her children in a constant state of worry.
"I got scared," Dion admitted. "It can be life-threatening. What's going to happen?"
Dion officially received her diagnosis of the degenerative disease in December 2022, a revelation that undoubtedly altered the trajectory of her life and career.
Despite the overwhelming challenges, Dion also shared the support she's received from friends, including Australian music legend John Farnham, emphasizing the profound impact of their kindness during her difficult journey.
The first trailer for the upcoming Celine Dion documentary, "I Am: Celine Dion," was released, offering a poignant glimpse into the singer's battle with stiff person syndrome. The trailer features Dion speaking about her struggles, intertwined with audio of another voice repeatedly saying her name while a 911 operator asks for details of the emergency.
Though it's not explicitly stated in the trailer, it's implied that the distressing call to 911 was likely related to Dion's struggles with stiff person syndrome, highlighting the severity of her condition and the challenges she faces daily.
The trailer provides viewers with a mere glimpse of the forthcoming documentary.
Within it, Celine Dion, the Canadian icon, confesses her initial hesitance to divulge the extent of her recent tribulations. Nonetheless, she bravely unveils the constraints she faces during her workouts, shedding light on the challenges she grapples with on a daily basis.
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